Romanian/English version: 30 intrebari pe care sa le adresezi medicului specialist in endometrioza

Iata mai jos cateva intrebari pe care sa i le adresezi unui medic care este sau despre care stii ca este specialist in endometrioza. Motivele sunt multe: pentru ca sunt cumva “general valabile” si te lamuresc in multe alte aspecte, dar si pentru a vedea daca rezonezi cu doctorul din fata ta sau sau daca este intr-adevar specialist in aceasta afectiune despre care se stiu atat de putine.

Bineinteles, fiecare caz e diferit, asa ca intrebarile vor varia in functie de asta. Listei de mai jos ar trebui sa ii adaugi cateva intrebari “personalizate”. In plus, nu uita ca endometrioza este o boala incurabila inca ceea ce inseamna nu ca nu poate fi controlata cu succes, ci ca nu exista tratament final, care sa vindece.

Nu uita ca doctorul nu este Dumnezeu. E de inteles sa spuna “nu stiu” la o anumita intrebare.  De exemplu, cauzele clare ale endometriozei nu sunt cunoscute, exista doar teorii, ceea ce inseamna ca unii doctori s-ar putea feri sa dea un verdict final privind cauza. Asta nu inseamna ca nu stiu, ci ca pur si simplu nu vor se se pronunte.

Asadar, iata mai jos ce intrebari ai putea include la primul consult la medicul cu experienta in endometrioza.

  1. Ce este endometrioza?
  2. Poate fi endometrioza ereditara, copiii sau nepotii mei o pot mosteni? (mai ales daca ai cazuri in familie)
  3. Este adevarat ca endometrioza se diagnosticheaza numai prin operatie laparoscopica?
  4. Care sunt factorii de risc pentru endometrioza?
  5. Ce trebuie sa fac pentru a sti sigur daca am sau nu am endometrioza?
  6. Formele incipiente ale bolii (stadiul 1, 2) pot avansa in stadii avansate?
  7. Ce pot face pentru a impiedica sau macar pentru a incerca sa previn acest lucru?
  8. Care sunt cele 4 stadii si criteriile de stadializare a bolii?
  9. Am un chist ovarian de multi ani. Doctorii imi spun sa nu il operez. Se poate transforma in chist endometriozic? Se poate maligniza, in timp?
  10. Ce tratament imi recomandati, avand in vedere situatia mea prezenta?
  11. Cat de mult conteaza in contextul endometriozei dieta si sportul?
  12. Sunt anticonceptionalele sau tratamentele de ultima generatie eficiente pentru toata lumea? La ce sa ma astept, obiectiv vorbind, in privinta simptomatologiei, dar si a rezultatelor?
  13. Va trece endometrioza mea dupa ce ma operati?
  14. Ce pot face dupa operatie pentru a incetini progresul bolii?
  15. Cum imi pot afecta anticonceptionalele viata de zi cu zi (inclusiv viata intima).
  16. Ce pot lua pentru a preveni efectele lor secundare?
  17. Ma confrunt cu uscaciune vaginala sau dureri la contact sexual. Ce imi recomandati?
  18. De intrebat despre orice alt simptom crezi tu ca este asociat endometriozei (durere la contact, la urinare, tulburari gastro intestinale, de muschi, de picior, de spate, durere si sange expectorat in timpul ovulatiei sau a menstruatiei etc.)
  19. Este RMN-ul sigur sau complet? Trebuie sa il fac cu protocol? Ce presupune acesta si de ce se recomanda o astfel de tehnica speciala?
  20. Cat de des trebuie sa vin la control, in functie de stadiul endometriozei mele si a cazului meu (operata, neoperata etc.)?
  21. Imi poate afecta endometrioza viata sexuala?
  22. Ce alti specialisti credeti ca ar trebui sa vad, avand in vedere istoricul meu medical si tabloul clinic in care intra si endometrioza?
  23. Sunt inca tanara si nu vreau sa am copii. Ar putea endometrioza sa ma afecteze in timp? Care sunt optiunile mele in acest sens?
  24. Cum imi afecteaza operatia de endometrioza rezerva ovariana?
  25. E sigur ca dupa operatia de endometrioza voi ramane insarcinata?
  26. Cum voi sti daca planul meu de tratament da roade?
  27. Care sunt beneficiile, dar si riscurile lui?
  28. Nu sunt de acord cu un punct din acest plan, din diverse motive (de relatat si discutat impreuna cu doctorul). Care imi sunt alternativele?
  29. Ce se poate intampla daca nu iau nimic pentru endometrioza?
  30. Cate paciente operate de endometrioza aveti? Cate cu stadii avansate, inclusiv cu nodul rectovaginal, desi operatie care a implicat rezectie de intestin. Aveti o echipa complexa de medici pentru acest tip de operatie?

Bineinteles, s-ar putea ca pe unele sa nu le gasesti necesare, asa ca fa-ti o selectie si adauga-le tu pe cele “personalizate”. In plus, fii deschisa in privinta simptomelor si a istoricului si incearca sa nu te lungesti prea mult in privinta discutiei la fiecare intrebare. Pana la urma, nu esti singura pacienta.

Si, nu il ultimul rand, nu uita ca controlul endometriozic ar trebui sa contina anamneza, consult pe masa (valve plus tuseu vaginal) si ecografie transvaginala. In plus, pe langa “vestitele” chiste endometriozice, aderentele si nodulii endometriozici sunt alte forme ingrijoratoare ale endometriozei pe care doctorul ar trebui sa le investigheze in timpul acestui consult.

Un articol de Marina Rasnoveanu

Daca vreti sa cititi si alte materiale despre endometrioza si un stil de viata sanatos, urmariti-mi blogul si pe Facebook sau Instagram.

 

English Version:  30 Questions to ask to a doctor who has experience in diagnosing and treating endometriosis

Here are some questions you should ask to your doctor, specialised in treating and diagnosing endometriosis. There are a lot of reasons to do that: because they give you answers to a lot of important issues, but also to see if you resonate with your doctor and somehow to make sure he surely knows a lot (and treated/operated) about this disease.

Of course, each case is different, so the questions will vary. Therefore, you can add some “personalized” questions anytime.

Keep in mind, your doctor is not God and that endometriosis is still a strange, unknown disease. It is somehow normal for him to say “I don’t know” to some questions, such as “What is the main cause for endometriosis” as here are different theories, so your doctor might want to stay in the safe zone.

Therefore, here are the top 30 questions to ask to your doctor, in terms of endometriosis.

  1. What is endometriosis, its causes, symptoms and risks?
  2. Can endometriosis be hereditary? Can my children or grandchildren inherit it?
  3. Is is true that the diagnosis of endometriosis can only be made only by laparoscopy?
  4. What are endometriosis risk factors?
  5. How could I know for sure if I have or not have endometriosis?
  6. Can stage 1 or 2 of the disease progress into more advances stages, like 3 or 4?
  7. What can I do to prevent this progression?
  8. What are the 4 stages of endometriosis?
  9. I have a non-endometriosic ovarian cyst for a long time. Doctors say I should not operate it. Can it progress into a endometriosic or malignant one?
  10. What treatment would you recommend, giving my condition and my desires (wanting or not wanting to have a baby)?
  11. How much diet and sport and a healthy lifestyle/mind set count in terms of managing endometriosis?
  12. Are birth control pills or other hormonal treatments given in endometriosis efficient for everyone? What are their side effects and what could their benefits be?
  13. Will I be cured of endometriosis/Will I forget about endometriosis once I will have the excision surgery?
  14. What can I do to slow down the progression of my disease?
  15. How can birth control pills or other hormonal treatments affect my every day life, including my sexual life?
  16. What can I do/take to minimize their side effects?
  17. Due to endometriosis, I have vaginal dryness and painful intercourse. What can you recommend me (creams, suppositories, pills etc.).
  18. Ask about any other symptom you think it might be related to endometriosis (painful intercourse, painful urination, gastro intestinal symptoms, muscle pain, leg pain, blood in stool etc.)
  19. Is MRI safe or enough? Should I do it with a special protocol (inserting a gel into rectum and vagina)? What does the protocol imply and why should I choose it?
  20. How often should I come to the post-op consult?
  21. Can endometriosis affect my sexual life (prior or after surgery, if needed).
  22. What other specialists should I see, giving my case, my medical history?
  23. I am still young and I don’t want children. Could endometriosis affect infertility in time?
  24. What are my options?
  25. How endometriosis surgery affects my ovary reserve?
  26. Is it certain that I will get pregnant after my endometriosis surgery?
  27. How will I know if the plan treatment recommended by you and agreed by me gives results?
  28. What are its benefits, but also its risks?
  29. I don’t agree with some things from this adviced plan (talk to your doctor about the reasons you don’t agree). What are my other choices?
  30. What could happen if I don’t take anything (diet, birth control pills, supplements, etc.) for endometriosis?
  31. How many endometriosis patients did you operated by excision method? How many with advanced stages? (also implying endometriosis nodules so needing bowel resection). Do you have a special team of doctors for this type of surgery?

Marina Rasnoveanu

Do you want to read more articles about endometriosis and tips&tricks about a healthy lifestyle, follow my blog on Facebook and Instagram too.

 

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